Lighthouse II: Phase 3 clinical trial
The Lighthouse II Project will investigate whether targeting HERVs with anti-retroviral therapy might slow disease progression in patients with MND/ALS.
Wave Life Sciences: FOCUS-C9 trial
Clinical trial for an investigation drug WVE-004, specifically designed for MND caused by a mutation in the C9orf72 gene or C9orf72-associated frontotemporal dementia (FTD).
Scotter Lab
Understanding the relationship between the deposition of protein aggregates and the death/dysfunction of various brain cells.
Exploring the views around the role of the MND Clinical Nurse Specialist (CNS) and incidence of MND in Canterbury.
Economic costs associated with MND
This study aims to estimate the economic costs associated with the care of people with MND for future public policy making and planning.
Centre for Public Health Research
Determining the relationship between MND and a range of known or suspected occupational or environmental exposures in NZ.
NZ MND Patient Registry
Helping MND researchers by assisting in research planning and finding study participants.
Christchurch Hospital Respiratory Physiology Lab
Researching pulmonary function to assist quality improvement and new tests.
Swallowing Research Laboratory
Striving to improve the lives of people with swallowing difficulties through improved assessment, treatment and medical education in the field of dysphagia.
COMPLETED STUDIES
The Rose Centre for Stroke Recovery and Research
Assessing the impact of swallowing skill protocol in patients with ALS.
The University of Auckland School of Nursing
Researching end of life care for neurodegenerative conditions
University of Canterbury
Understanding the role that protein aggregates, in particular those from the protein TDP-43, play in MND disease progression.
University of Canterbury Communication Disorders
Research into supporting adults with complex motor and speech disorders.
Thought-Wired
Researching and developing a brain-computer interface for people with severe disabilities.
Please scroll down and hover over each image to read a short blurb about that specific researcher or lab and click the image to be taken to the full profile. Alternatively you can access specific profiles directly via links available in the Research Profiles box. If you think your research should also be profiled here please contact us.
ALLIED HEALTH
Swallowing Research Laboratory
Striving to improve the lives of people with swallowing difficulties through improved assessment, treatment and medical education in the field of dysphagia.
MND Clinic, Canterbury DHB
Exploring the views around the role of the MND Clinical Nurse Specialist (CNS) and incidence of MND in Canterbury.
BIOMEDICAL
Scotter Lab
Understanding the relationship between the deposition of protein aggregates and the death/dysfunction of various brain cells.
Vanessa Morris
Dr Vanessa Morris and her team are interested in the role that protein aggregates, in particular those from the protein TDP-43, play in MND disease progression.
CLINICAL
Costs associated with caring for people with MND in New Zealand
This study aims to estimate the economic costs associated with the care of people with MND for future public policy making and planning.
NZ MND Patient Registry
Helping MND researchers by assisting in research planning and finding study participants.
CLINICAL TRIALS
Lighthouse II Phase 3 Clinical Trial
The Lighthouse II Project will investigate whether targeting HERVs with anti-retroviral therapy might slow disease progression in patients with MND/ALS.
Wave Life Sciences: Focus C9
Clinical trial for an investigation drug WVE-004, specifically designed for MND caused by a mutation in the C9orf72 gene or C9orf72-associated frontotemporal dementia (FTD).
EPIDEMIOLOGY
Centre for Public Health Research
Determining the relationship between MND and a range of known or suspected occupational or environmental exposures in NZ.
COMPLETED STUDIES
Please scroll down to read about previous MND Research in New Zealand. Hover over each image to read a short blurb about that specific researcher or lab and click the image to be taken to the full profile. You can contact us if you would like to learn more about these studies or would like to be put in touch with one of the researchers.
TECHNOLOGY
Communication Disorders
Current research focuses on supporting adults with complex motor and speech difficulties
Thought-Wired
Researching and developing a brain-computer interface for people with severe physical disabilities.
ALLIED HEALTH
