MND in the News

New gene therapy targeting C9orf72-ALS begins Phase 1 clinical trial in the UK | Dr Keith Mayl & Dr Ahmad Al Khleifat | MND Research Blog
New gene therapy targeting C9orf72-ALS begins Phase 1 clinical trial in the UK | Dr Keith Mayl & Dr Ahmad Al Khleifat | MND Research Blog

Researchers at King’s College Hospital, led by Professor Christopher Shaw, have embarked on the first…Read More

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Kennedy’s Disease vs ALS: How muscle patterns can aid diagnosis and perform as a novel biomarker | MND Research Blog | Martina Slapkova
Kennedy’s Disease vs ALS: How muscle patterns can aid diagnosis and perform as a novel biomarker | MND Research Blog | Martina Slapkova

Researchers from University College London found that muscle MRI can help distinguish ALS from Kennedy’s…Read More

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Add-on Masitinib Slows Progression of ALS, Final Phase 2/3 Trial Results Show | ALS News Today | Ana Pena
Add-on Masitinib Slows Progression of ALS, Final Phase 2/3 Trial Results Show | ALS News Today | Ana Pena

In a Phase 2/3 clinical trial, AB Science demonstrated that Mastinib in combination with Rilutek…Read More

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Small-Molecule Compounds ID’d That May Lessen Protein Buildup in Cells Under Stress, an ALS Hallmark| ALS News Today | Patricia Inacio
Small-Molecule Compounds ID’d That May Lessen Protein Buildup in Cells Under Stress, an ALS Hallmark| ALS News Today | Patricia Inacio

A study at UC San Diego School of Medicine identified small-molecule compounds that reduced the…Read More

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By Capturing Patients’ Feelings of Dyspnea, DALS-15 Scale May Ably Spot Those Needing Help with Breathing | ALS News Today | Ana Pena
By Capturing Patients’ Feelings of Dyspnea, DALS-15 Scale May Ably Spot Those Needing Help with Breathing | ALS News Today | Ana Pena

Researchers at Otto-von-Guericke University in Germany developed a patient-reported scale to quantify dyspnea in ALS…Read More

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Tailored treatment for ALS poised to move ahead | Nature Medicine | Carrie Arnold
Tailored treatment for ALS poised to move ahead | Nature Medicine | Carrie Arnold

The US Food and Drug Administration (FDA) has provisionally approved an experimental personalized treatment for…Read More

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Study Adds to Evidence that Smoking Increases Risk for ALS | ALS News Today | Jose Marques Lopes
Study Adds to Evidence that Smoking Increases Risk for ALS | ALS News Today | Jose Marques Lopes

Cigarette smoking has been proposed as a risk factor for developing ALS and accelerating disease…Read More

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Shocking: New Zealand death rate for motor neuron disease five times global average | Hawthorne Caller | Mike Billings
Shocking: New Zealand death rate for motor neuron disease five times global average | Hawthorne Caller | Mike Billings

The Global Burden of Disease (GBD) study – the world‘s largest scientific effort to qualify…Read More

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Swim training improves muscle strength in mouse model of ALS | ALS News Today | Joana Carvalho
Swim training improves muscle strength in mouse model of ALS | ALS News Today | Joana Carvalho

Swim training reduced the loss of muscle strength associated with ALS (5% less between 11…Read More

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ALS Researchers Discover New Biomarker and Drug Target | GEN
ALS Researchers Discover New Biomarker and Drug Target | GEN

A research team led by scientists at Harvard University said it has found a potential…Read More

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Major breakthrough in MND drug trial | Mercury
Major breakthrough in MND drug trial | Mercury

Australian scientists have developed a groundbreaking drug which postpones the development of Motor Neuron Disease.…Read More

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New Aussie drug gives hope to treat MND | SBS NEWS
New Aussie drug gives hope to treat MND | SBS NEWS

Australian researchers have developed a drug called CuATSM which has been found to slow the…Read More

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New Zealand has highest motor neurone mortality rate in the world | Stuff | Hannah Martin
New Zealand has highest motor neurone mortality rate in the world | Stuff | Hannah Martin

New Zealand has the highest mortality rates for motor neurone diseases in the world, new…Read More

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New Zealand has world’s highest death rate from motor neuron disease | News Hub | Jamie Ensor
New Zealand has world’s highest death rate from motor neuron disease | News Hub | Jamie Ensor

A global study has revealed NZ has the highest mortality rate from MND, with 2…Read More

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Shocking:New Zealand death rate for motor neuron disease five times global average | NZ Herald | Emma Russell
Shocking:New Zealand death rate for motor neuron disease five times global average | NZ Herald | Emma Russell

NZ’s MND death rate is the highest in the world and five times the global…Read More

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Study reveals shocking death rates for Kiwis with motor neurone disease | NZ Herald
Study reveals shocking death rates for Kiwis with motor neurone disease | NZ Herald

Dr Emma Scotter, who led the study, said NZ doesn’t have higher MND mortality rates…Read More

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NZ has highest rate of motor neurone disease of any country in the world | 1 News Now
NZ has highest rate of motor neurone disease of any country in the world | 1 News Now

A new study has found NZ has the highest rate of MND of any country…Read More

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Study: Athletes and footballers may be at greater risk of disease which killed Celtic legend Jimmy Johnstone | Herald Scotland | V.Weldon
Study: Athletes and footballers may be at greater risk of disease which killed Celtic legend Jimmy Johnstone | Herald Scotland | V.Weldon

Intense exercise could increase the risk of developing motor neurone disease (MND), research suggests. People…Read More

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Scientists discover mechanism behind motor neurone disease | BBC News
Scientists discover mechanism behind motor neurone disease | BBC News

Scientists say they have made a breakthrough in understanding the cause of both motor neurone…Read More

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Transparent fish give hope for motor neuron disease | Sydney Morning Herald | Rick Fenley
Transparent fish give hope for motor neuron disease | Sydney Morning Herald | Rick Fenley

Dr Nicholas Cole is the keeper of thousands of transparent fish that glow with pretty…Read More

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